多塞特郡因癲癇症失去兒子的家庭發起籌款活動

3個月前
多塞特郡因癲癇症失去兒子的家庭發起籌款活動

一個因癲癇症失去四歲兒子的家庭正在籌集資金,以幫助研究人員找到更好的治療方法。

裘德-坎南(Jude Cunnane)在一歲時被診斷出患有這種疾病,於去年10月去世。

專家們說,需要進行更多的研究來研究如何改善治療。

裘德的父母安德魯和勞拉-坎南已於7月2日在他們的家鄉多塞特郡普爾的康普頓莊園組織了一場籌款舞會。

一把曾經由艾德-希蘭(Ed Sheeran)擁有的吉他將是此次活動的拍賣品之一。

Cunnane先生說,在他最糟糕的時候,Jude曾經每晚有50或60次發作。

"所以在白天,他幾乎不能走路或說話。甚至像吃飯這樣簡單的事情對他來說都是不可能的。"Cunnane先生補充說。

倫敦大奧蒙德街醫院(Great Ormond Street Hospital)的兒童神經學家海倫-克羅斯(Helen Cross)教授說,60-70%的癲癇患者要麼對標準藥物治療有反應,要麼可能會逐漸消失。

坎納斯夫婦正在為正在進行的治療研究籌集資金。他們還支持青年癲癇症和朱莉婭之家臨終關懷的慈善機構。

坎納斯夫人說。"我們真的想確保裘德的去世能帶來一些積極的東西,並為兩個令人難以置信的慈善機構籌集資金,這兩個機構在裘德生前和死後都對他起到了絕對的作用。"


A family who lost their four-year-old son to epilepsy is raising money in a bid to help researchers find better treatments.

Jude Cunnane died in October last year after being diagnosed with the condition at the age of one.

Experts say more research is needed to look at how to improve treatments.

Jude's parents Andrew and Laura Cunnane have organised a fundraising ball at Compton Acres in their hometown of Poole, Dorset, on 2 July.

A guitar once owned by Ed Sheeran will be among the items up for auction at the event.

Mr Cunnane said at his worst Jude used to have 50 or 60 seizures per night.

"So in the daytime he could barely walk or talk. Even simple things like eating were impossible for him," Mr Cunnane added.

Professor Helen Cross, a paediatric neurologist at Great Ormond Street Hospital in London, said between 60-70% of people suffering with epilepsy either respond to standard medication or may grow out of it.

The Cunnanes are raising money towards ongoing research into treatments. They are also supporting the charities Young Epilepsy and Julia's House Hospice.

Mrs Cunnanes said: "We really wanted to make sure that something positive came out of Jude's passing and to raise money for two incredible charities who really have been absolutely amazing for Jude, both during his life and afterwards."

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